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Resources

ABLEDATA
The ABLEDATA database contains information on more than 25,000 assistive technology products including detailed descriptions of each product, pricing, and company information.


Accessible Playground Equipment
website lists companies that provide handicap accessible, playground equipment, accessories and components and products.


Adam
A popular consumer health/medical education site. Includes sections on men's, women's, and children's health. The "Health Illustrated" section features full-color medical artwork.


Adolescent Health Transition Project-Washington State
Information on health care transition provided for youths, families and professionals.


Afterschool
Website designed to assist local communities for supporting children and youth during out-of-school hours. Over 100 Federal programs to support children and youth is provided.


Air Transportation: Charitable Resources
Bridges4Kids web site provides a list of charitable organizations that will provide free air transport for needy individuals to access needed health care services.


Alphabetical Index of Terminology
Medical equipment and pharmaceutical manufacturers site contains information and hyperlinks


AMA Physician Select
AMA Physician Select provides information on virtually every licensed physician in the United States and its possessions.


American Academy of Allergy, Asthma and Immunology
Information about allergies and asthma. You can find out the pollen and spore counts for the area in which you live or plan to travel to.


American Academy of Pediatrics
Professional organization for pediatricians, has link for parents, health care advocacy information, state contacts and news alerts.


American Bar Association Center for Pro Bono
Links to information on free legal assistance with the SSI appeal process and other related civil matters.


American Board of Medical Specialties
Access to board certification status, location by city, state, and specialty of any physician certified by one or more of the 24 Member Boards of the ABMS.


American Cleft Palate-Craniofacial Association (ACPA)and Cleft Palate foundation (CPF)
The association is a non-profit, professional association of over 2,600 individuals in over 40 countries who are involved in treatment and/or research. Publications can be obtained.


American Dental Association
The ADA is the professional association of dentist. The site is comprehensive offering information for the public and professionals. It includes a search tool to find a dentist in your area.


Americans with Disabilities Act - ADA
U.S. Department of Justice, Americans with Disabilities Act, ADA HOME PAGE


AmericasDoctor
Includes a section that lets you have a private, realtime, one to one chat room conversation with a physician, therapist or other healthcare specialist 24 hours a day.


ARCH National Resource Center for Respite and Crisis Care Services
ARCH National Resource Center for Respite and Crisis Care Services is a support service for families. Can locate respite providers by location.


Assistive Media
This site offers on-line audio recording of literary works for persons with print reading/access barriers


Autism
The Center for the Study of Autism is a comprehensive page with information and resources.


Bandaids and Blackboards
A site for all family members to learn more about what it is like to grow up with some type of medical problem that doesn't go away.


Bazelon Center for Mental Health Law
Excellent resource on children’s mental health, children’s SSI and advocacy issues.


Beginnings
A non-profit agency in North Carolina that supports families of children who are deaf or hard of hearing.


Best Practices-Transition Services
Best Practice for transition services from school to adult life from the consumer/family viewpoint.


Bright Futures
Bright Futures is a national child health initiative to promote and improve the health, education, and well-being of all children, families, and communities.


Bright Futures Family Pocket Guide
This guide is a quick reference for families, highlighting important child health topics. It is organized according to age group/stage of development.


Captioned Media Program
The program provides users with free loan of videos and other media. Some Spanish-language captioned media.


CDC Office on Disability and Health (ODH)
ODH works to prevent secondary conditions. Mission is to maintain and improve the health of families, adults and children with disabilites


CenterWatch Clinical Trials
Find information related to clinical trials as well as new drug therapies recently approved by the FDA.


Chicago Asthma Consortium
For those interested in asthma, identifies educational programs, information, community agencies and offers resource directory for Chicago area.


Children with Spina Bifida
Family support, assistive technology, educational issues and many other resouce links can be accessed from this site


Childrens Charities of America
A comprehensive site that allows one to search for charities nationwide.


Clinical Trials-National Institutes of Health (NIH)
Through its Library of Medicine, NIH has developed this site to provide information about clinical research studies.


CoACH Care Center
The CoACH Care Center, Coordinating Action for Children's Health, is a not-for-profit children care center in Illinois.


Comeunity
Special Needs ListServs for families. Also resources on special needs and foreign adoption.


Coordinated Care Record
Developed to help families record and organize information about their child's special health care needs, the pages can be easily maintained in a 3-ring binder.


Cross Cultural Care
Diversity Rx: Promoting language and cultural competence to improve the quality of health care for minority, immigrant, and ethnically diverse communities.


Directory of State Title V CSHCN Programs
This website has links to info about each state's CSHCN program, contact information, and the criteria for program eligibility.


Disabilities Information Resources
A comprehensive resource of information, facilities and tools for people with physical and visual disabilities.


Disability Resources, Inc.
A nonprofit organization established to promote and improve awareness, availability and accessibility of information that can help people with disabilities.


Division of Professional Regulation
Information on licensure in Illinois for many professions including physicians, nurses and therapists.


Doral Dental
Illnois Department of Public Aid contracts with Doral Dental for clients receiving KidCare or Medicaid. Clients can call 888-286-2447 (TTY: 800-466-7566) for help.


Dr. Reddy's Pediatric Office on the Web
This Michigan doctor has created a web site which provides an extensive amount of useful information and resources on children's health.


DRs4Kids
DRs4Kids web site provides information on common medical topics concerning infants, children and adolescents. The information is presented in general terms.


DSCC and KidCare
This brochure explains how these programs work together to assist families and children with special health care needs.


DSCC Family Advisory Council
Find out more about the Council, whose members are selected to represent the diversity of Illinois children with special health care needs, and the work they do.


DSCC Family Handbook
This handbook answers the most common questions families have about DSCC services, and explains how to contact us for more information or assistance.


Early Childhood Intervention Clearinghouse
A project of the Department of Human Service and Public Health Association that provides library and information services.


Early Intervention-Illinois Department of Human Services
Illinois' Early Intervention Service System serves children less than 36 months of age with disabilities or developmental delays, or who are at risk of substantial delays.


Equip for Equality
A Federal protection and advocacy system for Illinois citizens with disabilities. They offer self advocacy training, one-on-one self advocacy assistance, legal and public policy advocacy.


ERIC: Educational Resources Information Center
National information system on education, enormous special education database.


Every Child Deserves a Medical Home
This brochure explains how a "medical home" is a process that provides coordinated health care services to children with special health care needs.


Exceptional Parent
This site contains information for parents of children with disabilities and special health needs including feature articles, directory of schools, camps, and products & services.


Families USA
Extensive information on health care policy for all ages, lots on Medicaid, SCHIP, helpful consumer publications and fact sheets.


Family Matters: Parent Training & Information Center
Family Matters provides information, referral, linkages, and training to parents, students with disabilities, and special education professionals.


Family Resource Center on Disabilities (FRCD)
The FRCD, organized by parents, professionals, and volunteers, operates a federally funded Parent Center that provides information, training and support services.


Family Village
Very comprehensive site, many links, covers all aspects of parenting a child with special needs. Webmaster is a parent.


Family Village School: Transition
Provides links to transition-related articles, guides and websites.


Family Voices
Family Voices is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.


FDA Homepage: U.S. Food and Drug Administration
Homepage for the Food and Drug Administration.


FDA Buying Medical Products Online
This site includes FDA tips and suggestions for consumers buying prescription and over-the-counter drugs on the Internet.


FDA: New and Generic drug approvals
This alphabetical listing covers FDA drugs from 1998 to present.


Great Lakes Disability and Business Technical Assistance Center
Materials on ADA and other legislation for people with disabilities. Services include tech. assistance, education and training, referral network and dissemination of materials.


Health & Medicine Web Site Directory
Site is a directory of web links to information on common health care topics.


Health Care Bureau of the Illinois Attorney General
The Bureau responds to consumer complaints regarding the health care industry and enforces related Illinois consumer fraud laws.


Health Care Resources for Special Kids
In this series of 25 Webcasts, parents and professionals discuss how to fund health care services. Learn about insurance and accessing free or low cost services.


Health Information for Teens with Chronic Health Conditions
The American Academy of Family Physicians has a web site for the whole family, including teens. The information includes childhood chronic conditions, their treatment and what teens can do to cope.


HealthAtoZ
A family oriented site which lets users customize the home page with news and features targeted to their interests


Healthfinder
US govt. web site with links to a wide variety of health and human services information sources. Links to online medical dictionaries, libraries, support groups, and other agencies.


HealthGrades
Free objective report card on doctors, hospitals, health plans, homehealth agencies and nursing homes. Offers profiles of providers nationwide and has search capacity.


HealthScout
HealthSCOUT(TM) is a comprehensive site that brings you daily news and information about special interests related to healthcare.


Hearing and Vision Connections (HVC) - Early Intervention Training and Technical Assistance
HVC is an information center and educator for both parents and professionals who have or work with young children with a vision or hearing loss.


Home Modification
Information about home modifications can be obtained. Funding resources are listed. A library containing videos on home modifications can be accessed.


IFLOSS
IFLOSS is a public-private partnership founded in 1998. The mission is to improve the oral health of all Illinois residents through advocacy and education.


Immigration and Naturalization Service
Designed to provide our customers with the most up-to-date information about the agency and the services offered.


InfantSEE
A public health program that offers free optometric exams in the first year of life.


Infinitec Durable Medical Equipment Project
The Durable Medical Equipment Exchange is a service that connects people with disabilities to organizations, companies and individuals who have durable medical they can use.


InteliHealth
A joint venture of Aetna Healthcare and Johns Hopkins University. This site has the latest tools and references including dictionaries, database indexes, and hospital locators.


Internet Resources for Special Children
The IRSC is a non-profit web site, which provides parents, educators, medical professionals, and caregivers with information and links on topics regarding children with disABILITIES.


Journals on the World Wide Web
This site provides a list of medical and scientific journals with abstracts and/or tables of contents available on the World Wide Web.


KidCare
Information about Illinois' health insurance program for children through age 18. Low-income working families may qualify for help in paying insurance premiums.


Kids As Self Advocates
KASA is a national, grassroots network of youth with special needs and our friends, speaking on behalf of ourselves.


Kids Camps
All type of camps are listed according to region of interest. Information on many different type camps including: special needs camps, residential camps, day camps, and more can be accessed.


KidsHealth
Created by medical experts, KidsHealth has accurate, up-to-date information about growth, fitness, lab tests, medical and surgical conditions, and the latest treatments.


LaurusHealth
LaurusHealth is a vast resource of health information - including a Pharmaceutical Guide, Medical Tests database, and a comprehensive list of Support Groups.


Lets Face It
Let's Face It USA is a nonprofit network that links people with facial disfigurement and all who care for them to resources that can change their lives.


LifeLine Pilots
LifeLine (formerly AirLifeLine) is a non-profit group providing people in medical/financial distress access to free air transportation (small aircraft).


Lifespan
Illinois Life Span is the statewide information and advocacy coordination system for people with developmental disabilities.


M.I.S.S. Foundation
This is an international organization providing support to grieving families, volunteer opportunities, public policy and education, and programs to reduce infant and toddler death.


Mayo Clinic Health Oasis
One of the best known consumer sources of health information. The library section has an extensive list of reference articles.


MCH WebRing
A WebRing is a site which provides links to other sites on a specific subject or topic. This WebRing lists other sites of interest to the Maternal-Child Health community.


Medical Home Initiatives
The goal of the program is to support and provide advocacy for pediatric health care professionals who care for children with special needs in managed care arrangements.


Medical Home: What Families Need to Know
This article explains what a Medical Home can do for families and children with special health needs. More information is available at http://www.medicalhomeinfo.org


Medical Matrix
Targeted primarily to US health care workers, and motivated consumers who want to familarize themselves with medical terminology.


MedicineNet
This site provides health news and resources produced by doctors. There is a database with information on 400 diseases and treatments.


Medline
MEDLINE database FREE of charge and has more than 9 million references to articles published in 3,900 biomedical journals.


Mental Health Services Knowledge Exchange Network (KEN)
KEN is a national, one-stop source of information and resources on prevention, treatment, and rehabilitation services for mental health conditions.


Mobile Dentists
Mobile Dentists is a team of highly dedicated dental professionals committed to improving the oral health of those in need. Visit page for more information.


National Center on Physical Activity & Disability
Located within UIC, the Center serves as a national clearinghouse for resources on physical activity for people with disabilities.


National Father’s Network
Specifically for men who have children with special needs, information, advocacy and support.


National Heart, Lung and Blood Institute
Developed the standards of asthma management. Provides free educational materials to schools and families


National Immunization Program (NIP)
The Centers for Disease Control and Prevention (CDC) provides answers to your questions about immunizations.


National Information Center for Children and Youth with Disabilities.
A national information and referral center on disabilities and related issues. Our special focus is children and youth. Information is available in Spanish also.


National Information Clearinghouse on Children who Are Deaf-Blind
Clearinghouse is a federally funded information and referral service for children ages 0-21 years who are deaf-blind. Site provides access to a broad spectrum of information at no cost.


National Institute of Dental and Craniofacial Research
The mission of the Institute (NIDCR) is to improve oral, dental and craniofacial health through research, research training, and the dissemination of health information.


NEC*TAS: National Early Childhood Technical Assistance System
Information about early intervention, early childhood special education, parent involvement.


Needy Meds
Information on drug assistance programs and how to request help. Contains index of available medications.


Newsletter for Families
DSCC's Special Additions newsletter provides national and state information in Spanish and English for families of children with special health care needs in Illinois.


NORD: National Organization for Rare Disorders
Links and referrals for many rare disorders. Parent and consumer support.


Northwest Airlines KidCares
Northwest provides a program for travel for medical treatment for children under age 18 years. The airline encourages people to donate frequent flyer miles for this program.


Nutritional Supplements: DPH Genetics program
This is a listing of specialized nutritional supplements available via public health for infants and children with certain inborn errors of metabolism.


Nutritional Supplements: WIC program
This is a listing of nutritional supplments available for eligible participants in the Women, Infant and Children programs in Illinois.


Online Mendelian Inheritance in Man
A catalog of human genes and genetic disorders. Textual information, pictures, and reference information can be accessed.


Our-Kids
Website developed by parents devoted to raising special kids with special needs


PACER: Parent Advocacy Coalition for Educational Rights
National "home" for Parent Training and Information Centers in all states. Lots of resources on special education, health care, transition and family support.


ParentPals
A site sponsored by Ameri-Corp Speech and Hearing. The site provides pertinent information on Special Education and Gifted Education programs and services.


Parents Guide -Illinois State Board of Education (ISBE)
This guide informs parents and others about the educational rights of children with disabilities that receive special education services. Available in Spanish or English.


Parking Placard/Plates for Persons with Disabilities in Illinois
The Illinois Secretary of State provides online access to the application for a parking placard and/or license plates for persons with disabilities. Physician certification is required.


Patient Services Incorporated
This non-profit group helps with the cost of health insurance & pharmacy co-payments for persons with certain chronic illnesses. Help is based on medical & financial need.


Personal Captioner
Eye glassees (including prescription lenses) can have a monitor built into the frame. The text to be captioned is provided through wireless transmission.


Preparing for Adulthood
This brochure outlines the medical, financial, educational and legal issues that should be addressed to help teenagers and their families prepare for their future transition to adulthood.


Red Cross of Greater Chicago
Includes a management program for groups of parents and children with asthma in Chicago area.


Self Help for Hard Of Hearing People, Inc.
They strive to improve the quality of hard of hearing people's lives through education, advocacy and self help.


Shriners Hospitals
Provides information about the Choices program, special orthopaedic programs, and information about conditions, treatment and eligibility requirements.


SIU Medical Library
Resources from the library can be obtained. A list is provided that includes medical and scientific journals with abstracts.


Social Security Administration
Provides information about the Disability Determination process and Social Security Disability publications and information.


Special Child Magazine
On-line magazine by and for parents, has bulletin board, matching, seeks stories/pictures from readers.


Special Needs Network (SNN)
This Web site offers Department of Defense (DoD) families with special medical and/or educational needs access to information, resources, and each other.


State of Illinois
Links to state government and state agencies.


State of Illinois Comprehensive Health Insurance Plan
CHIP, a state program, to provide health insurance to residents who due to existence/history of a medical condition, are unable to acquire insurance.


The American Public Health Association
This site provides a forum for sharing the latest information on the federal managed care legislative debate.


The Boomer Esiason Foundation for Cystic Fibrosis
Foundation is a partnership of leaders committed to funding research for cystic fibrosis. Site offers resource information, current news, events and an on line store.


The Center for Technology in Education (CTE)
CTE improves the quality of life of children and youth with special needs through teaching, research, and leadership in the use of technology.


The National Lekotek Center
The Center provides family play centers and toy lending libraries that give children with special needs access to play to bring both joy and learning into their lives.


Ticket to Work and Self Sufficiency Program / Transition
A new program providing expanded access to employment services, vocational rehabilitation services, or other support services.


Transition Coalition
Information, support and linkages for all people interested and involved in transition. Free publications available


Transition Research Institute
Site promotes the successful transition of youth with disabilities from school to adult life, offering an abundance of information.


Transition/CHOICES/Care Coordination
Links to resource guides, care plans, survey results and the transition news page.


Transition-related Internet Resources
This document contains information on a variety of websites and other resources on transition, including the areas of health care, education, employment and independent living.


Universal Telephone Assistance Corporation
Linkup and Lifelife are two federally funded programs that assist families with paying for telephone installation and monthly service. Eligibility requirements apply.


US Department of Education
Site focusing on national efforts to improve education, promote new initiatives and partner with families to benefit children.


Virtual Childrens Hospital
A digital library is provided. Medical information for patients can be accessed.


Virtual Public Health Center
Site offers interactive anatomy, literature searches, world wide statistics, and more.


Vision USA
VISION USA helps people by providing basic eye health and vision care services free of charge to the many uninsured low-income people and their families.


Webcast KMCO
Offers a series of monthly audio webcasts on topics related to children with special needs and managed care organizations. Features a professional, a parent, and a moderator.


Wish Granting Organizations
Family Village offers this comprehensive web page describing the many "wish granting" organizations.


Young adult interested in being an e-mentor to others
Faye is a young adult who is disabled and interested in mentoring and coaching others on how to manage health and related needs.


Your Surgery
This site uses photos, diagrams and animation to detail common surgeries and their risks.

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